Oct 17 2025
DSAO Parent & Family Conference
Jolly Roger Inn & Resort
In 1990, a small group of parents joined together for support, information sharing and also developed a baby package for parents of children with Down syndrome.
After realizing the need in the community to share this information, Up About Down was formed. Since then, the group has grown and we now share more than just a baby package – we share a wealth of experience and information – throughout our group and the community at large. We do our best to advocate for our children and educate the public along the way.
Our Board
Suzanne Cyr
President
Jamie Ruggaber
Vice-President
Cindy Tracey
Treasurer
Lauryn Lefrancois
Secretary
Matt Campbell
Director
Tina Greco
Director
Celesta Ponikowski
Director
Aaron Rodrigues
Director
Wendy Tavares
Director
Our Coordinators
Heather Cruwys & Lisa Homenick
Baby Package
Matt Campbell
0 - 5 Years Leader
Jamie Ruggaber
6 - 12 Years Leader
Tina Greco & Wendy Tavares
13 - 21 Years Leaders
Dolores Pacitti & Lauryn Lefrancois
22+ Years Leaders
Suzanne Cyr, Jamie Ruggaber & Wendy Tavares
Communications (Webmail, Voicemail response)
Aaron Rodrigues
Membership Contact List
Celesta Ponikowski
World Down Syndrome Day Coordinator
Aaron Rodrigues
Website
Celesta Ponikowski & Aaron Rodrigues
Social Media
Joanna Conrad & Alternate Monica Gilles
Public Board SEAC
Cindy Nantais & Alternate Lidia D'Alimonte
Catholic Board SEAC