Oct 15 2025
In 1990, a small group of parents joined together for support, information sharing and also developed a baby package for parents of children with Down syndrome.
After realizing the need in the community to share this information, Up About Down was formed. Since then, the group has grown and we now share more than just a baby package – we share a wealth of experience and information – throughout our group and the community at large. We do our best to advocate for our children and educate the public along the way.

Our Board

Suzanne Cyr
President

Jamie Ruggaber
Vice-President

Cindy Tracey
Treasurer

Lauryn Lefrancois
Secretary

Matt Campbell
Director

Tina Greco
Director

Celesta Ponikowski
Director

Aaron Rodrigues
Director

Wendy Tavares
Director
Our Coordinators

Heather Cruwys & Lisa Homenick
Baby Package

Matt Campbell
0 - 5 Years Leader

Jamie Ruggaber
6 - 12 Years Leader

Tina Greco & Wendy Tavares
13 - 21 Years Leaders

Dolores Pacitti & Lauryn Lefrancois
22+ Years Leaders

Suzanne Cyr, Jamie Ruggaber & Wendy Tavares
Communications (Webmail, Voicemail response)

Aaron Rodrigues
Membership Contact List

Celesta Ponikowski
World Down Syndrome Day Coordinator

Aaron Rodrigues
Website

Celesta Ponikowski & Aaron Rodrigues
Social Media

Joanna Conrad & Alternate Monica Gilles
Public Board SEAC

Cindy Nantais & Alternate Lidia D'Alimonte
Catholic Board SEAC