Up About Down - Facts & Myths and About Us

Up About Down is an organization of people committed to enhancing the quality of life for individuals with Down syndrome and their families. We strive to provide positive and accurate information through advocacy and education thereby raising awareness throughout the community.

In 1990, a small group of parents joined together for support and information-sharing. They developed a baby package for parents of children with Down syndrome. After realizing the need in the community to share this information, Up About Down was formed. Since that time the group has grown and we now share more than just a baby package - we share a wealth of experience and information - throughout our group and the community at large.

Down syndrome was discovered in 1886 after Dr. J.L. Down, the man credited with first describing the disorder.

Down syndrome is a chromosomal disorder that occurs in approximately 1 in 700 births in Canada. Eighty per cent of children with Down syndrome are born to women under the age of 35. The exact cause and prevention of Down syndrome is currently unknown. It is not related to race, religion or socio-economic status.

As in general population, people with Down syndrome have a wide variation of cognitive, social and behavioral abilities and will develop their own unique personalities and talents.

Children with Down syndrome are growing up, getting jobs, and getting married. They’re not sick, and they don’t need fixing. What they do need is respect for their own unique gifts and talents.

There is no cure for Down syndrome and it can occur in any family.

Families raising a child with Down syndrome experience the same joys and challenges experienced by all parents. Photo of girl on beam with the help of an instructor

The Windsor-Essex Down Syndrome Parent Association