About-Downs

Our Beginning

In 1990, a small group of parents joined together for support, information sharing and also developed a baby package for parents of children with Down syndrome. After realizing the need in the community to share this information, Up About Down was formed. Since then, the group has grown and we now share more than just a baby package – we share a wealth of experience and information – throughout our group and the community at large. We do our best to advocate for our children and educate the public along the way.

Our Board

Suzanne Cyr
President
Jody Lowrie
Secretary
Cindy Tracey
Treasurer
Celesta Ponikowski
Director
Aaron Rodrigues
Director
Sarah Stanton
Director
Jamie Ruggaber
Director
Dayna Pitre
Director

Our Coordinators

Baby Package
Sue Mandolfo
Christmas Party
Sheena Lane
Communication Liaison/Contact Lists
Sue Cyr
Dances: Halloween & Valentine
Sue Cyr/Remily Livingstone
Leaders
0-5 years – Jamie Ruggaber
6-12 years – Dayna Pitre
13-21 years – Christina Gatti & Jennifer Wallace
22+ years – Dolores Pacitti
SEAC Rep
Catholic – Sarah Stanton
Public – Monica Gilles
Special Event Planner
Celesta Ponikowski
Website
Aaron Rodrigues

Donation

Join Up About Down

Upcoming Events
Aug
14
Sat
2021
T-21 Project, August 14, 2021 @ Jackson Park
Aug 14 @ 10:00 am – 4:30 pm

Hi Families,

UAD has been offered a wonderful opportunity to partner with Nikki Vos this summer, for photoshoots and more.

She is a first year photography student at Lambton College. She currently runs a small hobby photography business that focuses on providing affordable, quality photos to all families and individuals.

This summer, Nikki is hoping to work on a two part personal photography story project, The T-21 Project, ‘21. She wrote, “As someone who has been blessed with a family member with Down syndrome, the goal of the project is to highlight and share the stories of Ontario families who have also been blessed with a family member with Down syndrome. This project will provide families with an affordable way to represent their individuality and uniqueness.”

From Nikki:
“The first part of the project will include family or individual mini photoshoots, as well as a questionnaire form prior to the shoot. Part of the proceeds from the photoshoot will be donated back to your association. The second part will include putting together a photo story book that shares a variety of stories and photos from the families who have participated in the photoshoots. Families will be given the option to have their stories included, if desired, and UAD the WEDSA will be given the opportunity to use the books as a fundraiser.”

“I absolutely love Jackson Park, and think it would be perfect for this project! I’ve created an advertisement poster with the link for participant signup:

https://signup.com/go/uiyeZuJ

If you have any questions, please contact me.”

Thank you,

Nikki
Upendo Imaging
https://upendoimaging.myportfolio.com
Instagram – @upendo.imaging

*View flyer below

T-21 Project Windsor-Essex

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