Our Beginning

In 1990, a small group of parents joined together for support, information sharing and also developed a baby package for parents of children with Down syndrome.

After realizing the need in the community to share this information, Up About Down was formed. Since then, the group has grown and we now share more than just a baby package – we share a wealth of experience and information – throughout our group and the community at large. We do our best to advocate for our children and educate the public along the way.

About down syndrome

Our Board

Suzanne Cyr

Suzanne Cyr

President

Jamie Ruggaber

Jamie Ruggaber

Vice-President

Cindy Tracey

Cindy Tracey

Treasurer

Lauryn Lefrancois

Lauryn Lefrancois

Secretary

Matt Campbell

Matt Campbell

Director

Tina Greco

Tina Greco

Director

Celesta Ponikowski

Celesta Ponikowski

Director

Aaron Rodrigues

Aaron Rodrigues

Director

Wendy Tavares

Wendy Tavares

Director

Our Coordinators

Heather Cruwys & Lisa Homenick

Heather Cruwys & Lisa Homenick

Baby Package

Matt Campbell

Matt Campbell

0 - 5 Years Leader

Jamie Ruggaber

Jamie Ruggaber

6 - 12 Years Leader

Tina Greco & Wendy Tavares

Tina Greco & Wendy Tavares

13 - 21 Years Leaders

Dolores Pacitti & Lauryn Lefrancois

Dolores Pacitti & Lauryn Lefrancois

22+ Years Leaders

Suzanne Cyr, Jamie Ruggaber & Wendy Tavares

Suzanne Cyr, Jamie Ruggaber & Wendy Tavares

Communications (Webmail, Voicemail response)

Aaron Rodrigues

Aaron Rodrigues

Membership Contact List

Celesta Ponikowski

Celesta Ponikowski

World Down Syndrome Day Coordinator

Aaron Rodrigues

Aaron Rodrigues

Website

Celesta Ponikowski & Aaron Rodrigues

Celesta Ponikowski & Aaron Rodrigues

Social Media

Joanna Conrad & Alternate Monica Gilles

Joanna Conrad & Alternate Monica Gilles

Public Board SEAC

Cindy Nantais & Alternate Lidia D'Alimonte

Cindy Nantais & Alternate Lidia D'Alimonte

Catholic Board SEAC