A baby package is available to new parents free of charge in hard copy format. Below is a list of the package contents as well as links to download PDF versions of each publication where available. Click on the links below to download. (You will need Adobe Reader to view).
ACSD Forms and Information
Canadian Down Syndrome Information
A checklist for parents with a child with Down syndrome:
Contact some of the following Early intervention Programs:
- Children First 519-250-1850 www.children-first.ca. Children First provides services to families with children birth to 6 years who have special needs. These needs may include developmental and mental health. It is a community based non-profit agency. Staff includes speech/language pathologists, social workers, occupational therapists, physiotherapists, psychologists, and resource consultants. Parents may self refer.
- John McGivney Children’s Centre 519-252-7281 For children up to 21 years of age who have special needs. Services may include: speech/language therapy, physiotherapy and occupational therapy. They have a preschool program for children 18 months to 6 years old.
- Talk 2 Me – St. Mary’s Family Learning Centre 519-252-0636. For children up to 5 years of age. Services may include: speech/language assessment, educational workshops and parent intervention programs.
Request a referral to a Pediatrician to get a full medical evaluation to rule out any medical causes for delays. Many medical conditions may co-exist with Down syndrome
- Ask your pediatrician about the Respiratory Syncytial Virus (RSV) shot that every baby with Down syndrome is medically covered to receive through Met Hospital for the first 2 years of life during the winter months.
Research information on Down syndrome
- Call Up About Down; Windsor-Essex Down Syndrome Association at 519-973-6486 to become a member. Your membership includes: a baby package and hospital or home visit upon your request, newsletters, resource library, group meetings, and social functions for the whole family and subsides towards therapeutic services. Memberships are free.
- Down Syndrome Association of Ontario (DSAO): 1-905-439-6644; www.dsao.ca; e-mail email@example.com Memberships are available.
- Down Syndrome Research Foundation: 1-604-444-3773; www.dsrf.org; firstname.lastname@example.org.
- Call Canadian Down Syndrome Society 1-800-883-5608 www.cdss.ca for more information on Down syndrome or to become a member. Memberships are $20 per year and include a vote at the Annual General Meeting, four issues of CDSS Quarterly Newsletter, information and assistance from the toll free information line and resource centre, discounted conference registration fees, and periodical discounts on selected publications.
Apply for all government grants. See what’s available online atwww.children.gov.on.ca
- Family Respite Services 519-972-9688 www.familyrespite.org Respite support services are provided to enhance the quality of life for children with various disabilities.
- SSAH-Special Services At Home 519-254-1651 Helps children with developmental disabilities and their families by providing monthly funding to purchase services and supports.
- ACSD-Assistance for Children with Severe Disabilities provides financial help to assist with some of the extra costs of caring for a child with a disability. Financial and medical criteria must be met.
- Disability Tax Credit is for people who have a severe and prolonged mental or physical disability. Form T2201.
- Disabled Person Parking Permit-DPPP: You may qualify for this permit. Form to be completed by a Physician www.mto.gov.ca
Other Funding Options:
Investigate Nursery schools, Preschools, Daycare, or Ontario Early Years Programs for socialization in language-rich environment.
www.ontarioearlyyears.ca Free stay and play drop-in centre’s where parents and caregivers of children can participate in early learning activities and parenting programs. Free infant massage classes are offered at some Ontario Early Years Centers.
Investigate recreational programs and services:
- Windsor/Essex Therapeutic Riding Association 519-726-7682
- SPEQTRA Special Equestrian Therapeutic Riding Association 519-322-2463
- Access 2 Entertainment Card www.access2.ca
- City of Windsor Parks and Rec. offers a 10% discount for special needs children
- Check out the local community rec. centre in your area, many offer parent and baby swimming, yoga and stroller fitness classes.
- Tiny Signers: sign language classes or workshops, contact Jill Paron-St. Louis 519-978-3839 or email at email@example.com
- Mother Care-Support for New Moms (Comcare Health Services) 519-966-5200: Personal Support Workers provide support by doing a variety of tasks such as; meal prep., prepare formula, light housekeeping, care for older children and assist mom with infant care.
Parent Support Groups:
- Up About Down: 519 973-6486 Our members are divided into the following age groups: Newborn – 5 years, 6 – 12 years, 13 – 21 years, and 22 + (Adults). Connections are made with other parents through events and activities planned by the group leaders of each age group.
- Windsor-Essex Family Network 519-974-1008 Become a member for $10 per year and receive newsletters and workshop information.
- Ensemble 519-776-6486, Ext. 225 or e-mail at firstname.lastname@example.org connecting parents with parents of special needs children, provide workshops.
Planning for the Future
- Contact a lawyer to establish a will with a “Discretionary Trust” (Henson Trust) left for your child.
- RDSP (Registered Disability Savings Plan) Contact your financial institution to discuss setting up a RDSP for your child. (not all banks are providing this service at this time as the RDSP is newly offered as of December 2008.