Down Syndrome Specific Sites
Canadian Down Syndrome Society
www.cdss.ca
Comprehensive site with links to DS groups across Canada. Watch for exciting changes to this site soon! Order books online. Send questions to our information line for research and response.
Adult Down Syndrome Centre at Advocate Lutheran General Hospital
www.advocatehealth.com/adultdown/
Comprehensive medical resource providing multidisciplinary care for adults with Down syndrome with an emphasis on health promotion.
Breastfeeding a baby with Down Syndrome
www.breasfeeding.asn.au/bfinfo/down.html
Down Syndrome Research Foundation
www.downsasa.asn.au
Large Australian site
Mosaic Down Syndrome Site
www.mosaicdownsyndrome.com
National Down Syndrome Congress
www.ndsccenter.org
A national US site with good information and links
National Down Syndrome Society
www.ndss.org
Large US site
The Down Syndrome Educational Trust
www.downsed.org
UK-based charity that works to advance the development and education of individuals with Down syndrome worldwide
Disability Solutions
www.disabilitysolutions.org
Offers high quality newsletter online. Articles archived. Many DS specific topics. Check out "Wandering in Children with DS"
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Self-Advocate Sites
Club NDSS
www.clubndss.org
Kid friendly site sponsored by the National Down Syndrome Society in US. Very cool! Includes their own message board!
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Inclusion/Education Sites
Blackstone Valley Chapter Learning Web
www.bvcroarc.org/learningweb
Specifically designed for people with developmental disabilities. It provides interesting, stimulating and practical lessons in basic literacy.
Canada's School Net
www.schoolnet.ca
Federal government initiative to connect our schools. Links to over 5,000 teacher approved learning resources. Some may find the site tricky to navigate
Canadian Council for Exceptional Children
www.sped.org
Comprehensive website dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
Pro Teacher
www.proteacher.com
Classroom resources for teachers, includes section for students who have special needs. US site.
Special Education Resources on the Internet
www.seriweb.com
Excellent comprehensive site
Students with Intellectual Disabilites: A Resource Guide for Teachers
www.bced.gov.bc.ca/specialed/sid/
Practical information for teachers, including case studies and links.
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Other Conditions and Down Syndrome
Autism and Down syndrome
www.altonweb.com/cs/downsyndrome/howlin.html
River bend parent support group offers information on issues related to autism and down syndrome
http://groups.yahoo.com/group/ds-autism/
listserv for parents and professionals
www.disabilitysolutions.org/3-5.htm
1999 article "Down Syndrome and Autistic Spectrum Disorder"
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Medical Information
Handicaps
www.handicaps.ca
French language web site on disability issues in Ontario.
Wellness and Disability Initiative
www.bccpd.bc.ca/library.html
Customized research on health topics, sexuality section, plain language writing and health literacy .
Down Syndrome Health Issues
www.ds-health.com
A comprehensive site managed by an American paediatrician who has a son with Down syndrome. Comprehensive and sometimes technical.
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Related Sites
BC Coalition of People with Disabilites
www.bccpd.bc.ca/wdi
Spanish Information
www.nichcy.org
English and Spanish information related to children and disabilites
Photo Essay "Myth and Illusions"
www.theglobeandmail.com/special/photoessay/mythsillusions/
Intriguing black and white photos depicting disability and family
Hope
www.ualberta.ca/HOPE/
A non-profit organization dedicated to understanding and enhancing hope in individuals, families, and institutions
Choosing Naia: A Family's Journey
www.boston.com/globe/nation/packages/naia
Six part series published in the Boston Globe by Mitchell Zuckoff. Zuckoff expanded this series into the book by the same name. One family's journey from pre-natal diagnosis of DS to an update at age 5. Includes photo gallery. Excellent.
Disability Solutions
www.disabilitysolutions.org
Offers high quality newsletter online. Articles archived. Many DS specific topics. Check out "Wandering in Children with DS"
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Parenting
Special Children
www.specialchild.com/index.html
An online publication dedicated to parents of children with special needs
Today's Parents
www.todaysparent.com
Online edition of Canadian parenting magazine
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Sexuality and Disability Webliography
www.bccpd.bc.ca/wdi
This web-based bibliography lists articles, conference papers, books, brochures, teaching materials, videos, kits and web links. Resources listed by type of disability and by format.
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Support Group Faciliation (key word: self-help)
Self-help Resource Centre
www.selfhelp.on.ca
A great site on groups, maintenance, etc. Check out "How to Start and Maintain a Support Group"
Self-Help Resource Centre of BC
www2.vcn.bc.ca
Excellent selection of articles on facilitating groups, How to Start a Successful Mutual Aid Group", Managing a Crisis in a Group, Communication Skills, etc.
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Volunteer Coordination
Beach Center on Disability
www.beachcenter.org
Research and training organization on disability policy and issues. Very strong component on family issues and parent to parent support program development. Good resource for group leaders.
National Information Center for Children and Youth with Disabilities
www.nichcy.org
Comprehensive site (also in Spanish) related to parent support, disability issues and families. For parents and professionals.
Energize Inc.
www.energizeinc.com
A good site for ideas on volunteer appreciation, etc.
Association of Volunteer Administration
www.avaintl.org/education/conference.html
International association; has tools and resources to maximize volunteer resources
Volunteer Opportunity Exchange (VOE)
www.voe-reb.org/org_login.jhtml?lang=eng
This site will let you post a volunteer opportunity. Think outside the box - consider virtual volunteering options.
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